#IsItOk

Written a couple of days ago when I had no internet signal! I really enjoyed the Rio Summer Olympics 2016. I’ve always loved the Olympics since being little, winter and summer games. It’s when I discovered how exciting sport, different kinds of sports, could be. I’m British and have always been very proud to cheer…

Volunteering – How It Helps Me As Well As The Charity I Support

A few years ago The Hairy Bikers did a series on the BBC about Meals On Wheels, at the end they suggested people with an hour or two of spare time a week or a month looked into volunteering for a local Charity. ┬áMany charities could not run without the support of volunteers! ┬áMy son…

Freedom

Freedom is something we all take for granted. We’ve been brought up in a country where we have choice in most of our daily tasks.  Sometimes our health changes the way you have to look at life and freedom starts to disappear. Being independent isn’t as easy as it used to be. One of my…

Open Letter – Don’t Take Away My Independence

I have a blue badge because I can’t walk very far and am disabled despite only being 45. I waited two years while struggling with my mobility until I received my blue badge. I never parked in a disabled bay until I received my blue badge. I now struggle finding that lots of people without…

What A Difference Two Years Make

Two years ago my life changed… I was diagnosed with Fibromyalgia.  In some ways it was a relief to know why I was constantly in pain and always tired. I thought a diagnosis would help me to get on with the life I knew. How wrong could I be?! My life has changed dramatically.  I’ve…

Art Therapy

Did you enjoy colouring books when you were little? I did… I especially liked the doodle style pattern colouring books that appeared in the mid 1980’s. I keep reading about Art Therapy and how great it is for relaxing so I thought I’d try it for myself. Isn’t it amazing what you can create with…

Our Little Oasis

Oh heck what a week and it’s only Wednesday! My fibromyalgia and chronic fatigue syndrome get worse with stress, worry, lack of sleep and walking too far… I’m physically and mentally drained due to my mum being in hospital with a broken wrist since last Friday. I’ve been staying at my parent’s house since last…

Little Things Make A Difference

When you struggle with your mobility and getting out and about it’s the little things that can mean a lot. Today my Blue Badge arrived. I can now legally park in disabled spaces and on double yellow lines! No more working out where I can be dropped to do shopping tasks or when meeting friends…

Where’s The ON/OFF Switch?

I’m always being asked what Fibromyalgia is like, what are the symptoms, the causes, how it affects me. It affects people differently and just thinking about it can be exhausting. Some of the things I struggle with are chronic fatigue, tiredness and insomnia. It’s amazing how fatigue during the day can become insomnia at night!…

Fibromyalgia… Eight Months After Diagnosis

I’ve been discharged by Rheumatology today… back to the care of my GP… told to keep managing my fibromyalgia with a positive mind. To live life to the full but know my limits. Not to dwell on what I could do in the past and to keep looking forward. To take my pain meds and…

Access To Work – Travel to Work

When you first get diagnosed with something that’s a physical or mental health disability, your world falls apart. There is help out there you just have to look and see what you’re entitled to. I can’t always drive which left the question how do I get to work? We live in an age where answers…

Feeling Blue from Fibromyalgia

I look in the mirror and usually don’t see anything… occasionally and I see me… I see Sharon, the same Sharon I’ve always seen looking back at me. Perhaps if I saw something else in the mirror it would be easier to deal with the fact that my body can’t do what it’s always been…